My sweet little family and our story
After 9 weeks of ACTH therapy, the seizures stopped. In that 9 weeks we did morning and nightly shots after we went to the ER to check her blood pressure. She had horrible kidney stones and a handful of other bad side effects that I have blocked out! Anyway, we are still working, but she is making amazing progress. About 70% of the children that get what she has (infantile spasms - a severe form of epilepsy) never mentally mature beyond the age when the spasms began. With that in mind, we are VERY thankful and VERY blessed to have the sweet Kendal we have today. She keeps us hopping and smiling and laughing and sometimes crying! I registered her for Kindergarten the other day - that is amazing to me.