I took Kendal to Primary Children's Medical Center today for a neurological checkup. Her neurologist just retired last month, so we got to meet a new doctor. I have been hoping and praying that the new doctor was not so conservative and that he would think we could start Kendal on a slow taper off of her seizure medicine. Well, PRAYERS ANSWERED!!
I get to begin her taper tomorrow morning. She will get 3/4 of her normal morning dose and then a normal evening dose - we do that for 2 weeks and then decrease the evening dose to 3/4 and so on and so forth. That means in 4 months she should be tapered down to nothing - unless her seizures come back. (She has been seizure free for 3 years and 2 months.)
Anyway, it is great news at our house. Her meds have some yucky side effects and it will be interesting to see my REAL 5 year old daughter since she has been on these meds since she was 20 months old. I imagine she will still be a spitfire, but hopefully one that is really her and not the medicine!